Neuropathy and leg cramps

Posted by trishdub @trishdub, Nov 26 7:45am

I have burning and tingling in my feet which has gotten steadily worse over the years. I mostly notice it at night after getting into bed. Some nights they are on fire, other nights it's not too bad. I have never been to a neurologist. But I also suffer, and I mean suffer, from nocturnal leg cramps. The PN website notes muscle cramps/twitching as a symptom of neuropathy. Does anyone else experience leg cramps along with the neuropathy? I am desperate for a solution as I have tried many things. Magnesium at bedtime; epsom salt soak; magnesium oil with massage; stretching; exercising/not exercising; nervive; capsacin creams. Nothing always works, so I don't know what actually can work; perhaps I haven't found the right combination?
I do take 30mg of amitriptyline every night for the neuropathy. Perhaps I need to check with my DCP about upping the dose?
Thank you for any help you can give!

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Your leg and hand cramps are probably caused by dehydration. drink plenty of water before 6 pm though. Wearing socks in bed causes my right leg to burn and I quit that long ago. Hope these suggestions help you. Vyolet

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Profile picture for vyolet @vyolet

Your leg and hand cramps are probably caused by dehydration. drink plenty of water before 6 pm though. Wearing socks in bed causes my right leg to burn and I quit that long ago. Hope these suggestions help you. Vyolet

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@vyolet
Thank you. I know that I am well hydrated so I need not consider that. My best guess at this point is not enough movement.

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Profile picture for gmabecky1955 @gmabecky1955

I noticed over the past year or so that my calves were getting pretty tight. Then my legs really started having cramps that were consistent and intolerable - more so at night. Over the past couple of years my R & O doctor had increased my calcium and Vitamin D3 intake. I had taken magnesium for years as it had tested low. A couple of months ago I stopped taking all 3 supplements. My leg cramps stopped within a few days. I have been off of them for a little over 2 months now. Just got back my blood work from my primary doctor. I'm in the normal range. They are mailing my details so I don't have specifics yet. I still do stretch and use my rolling pin. Yes, you heard that right! I bought an old wooden rolling pin and use it to massage my leg muscles. So what works for one person may not work for another but thought I'd share my story. PS: I had taken an old lady multivitamin for years and years when my neurologist saw that my B6 levels were extremely high. Stopped that a little over a year ago. My neuropathy is still there but pretty good with just some numbness and tingling. Prior to stopping it was getting worse. No known cause for my neuropathy (ruled out a bunch of stuff).

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@gmabecky1955
Thank you! I think you are spot on saying that what works for one may not work for another. I've received all of the comments that people have made, taken what I think is relevant to my personal condition, and come up with my own plan. You may have seen it in another post. Once I have had success with this plan for a couple of months, I will begin, one by one, dropping the various strategies to see what is actually helpful and what is not. It is going to take quite a bit of time. but at least I get to see any results on a daily basis since I go to bed every night! So glad you've found some answers. It's tough to get into bed at night having no confidence in your ability to sleep.

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Profile picture for gmabecky1955 @gmabecky1955

I noticed over the past year or so that my calves were getting pretty tight. Then my legs really started having cramps that were consistent and intolerable - more so at night. Over the past couple of years my R & O doctor had increased my calcium and Vitamin D3 intake. I had taken magnesium for years as it had tested low. A couple of months ago I stopped taking all 3 supplements. My leg cramps stopped within a few days. I have been off of them for a little over 2 months now. Just got back my blood work from my primary doctor. I'm in the normal range. They are mailing my details so I don't have specifics yet. I still do stretch and use my rolling pin. Yes, you heard that right! I bought an old wooden rolling pin and use it to massage my leg muscles. So what works for one person may not work for another but thought I'd share my story. PS: I had taken an old lady multivitamin for years and years when my neurologist saw that my B6 levels were extremely high. Stopped that a little over a year ago. My neuropathy is still there but pretty good with just some numbness and tingling. Prior to stopping it was getting worse. No known cause for my neuropathy (ruled out a bunch of stuff).

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@gmabecky1955 I was diagnosed with neuropathy in my toes and feet. Many times, especially at night I had 10 out of 10 pain. A frozen water bottle was one strategy I used. I am so grateful to report that I found online by chance some stretching exercises - for toes and feet. If I do the exercises faithfully each day, for 10 minutes, the most pain I’ve experienced is six out of 10. I am not waking up crying and praying and looking at the clock to see if enough time has passed so I can take another Tylenol. So I get the rolling pin. Like you, usually just some numbness and tingling. Thank you Jesus! 🙏

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Hello, I have had terribe and frightening leg cramps for years until a new doctor I went to prescribed Verapamil. Its for high blood pressure, which I don't have. It relaxes the arteries and viens. It took away my leg cramps for a couple of years now. I am so grateful.

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Profile picture for amanancy @amanancy

Hello, I have had terribe and frightening leg cramps for years until a new doctor I went to prescribed Verapamil. Its for high blood pressure, which I don't have. It relaxes the arteries and viens. It took away my leg cramps for a couple of years now. I am so grateful.

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@amanancy
Thank you for this information. Personally, I have low blood pressure, so that would likely not work for me. So glad you found an answer! 🙂

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Profile picture for trishdub @trishdub

@amanancy
Thank you for this information. Personally, I have low blood pressure, so that would likely not work for me. So glad you found an answer! 🙂

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@trishdub Mine is on the low side too. It does not affect my BP at all. I have been taking it for a couple of years now. One before I go to sleep. You might ask your doc about it. I tried EVERYTHING and this was the only thing that worked. Good luck.

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Profile picture for amanancy @amanancy

@trishdub Mine is on the low side too. It does not affect my BP at all. I have been taking it for a couple of years now. One before I go to sleep. You might ask your doc about it. I tried EVERYTHING and this was the only thing that worked. Good luck.

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@amanancy
This is very good to know. For the last six nights I have been doing well with supplements and an exercise scheme with plenty of stretching. But I have found things in the past that "worked" but it was always temporary. We shall see!

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