Hi, Sue.
Thanks.
I don’t have an ID doctor but I confer with a Boston-based Bronchiectasis specialist (my regular pulmonologist is in Maine) and could possibly see an ID doctor there. Both doctors feel I am getting exacerbations too often (I have tested positive for klebsiella and staph aureus - sp? and antibiotics kicked those down. Essentially, I am needing antibiotics about every 3 months based on rapidly-developing symptoms, which they feel is too much. I do saline (7%) and the Aerobika 2x per day, plus Symbicort (I also have asthma). I do try to do “all of the things” in terms of management. I don’t garden, anymore. I purify all my water; I mask basically everywhere (a real drag and I really miss indoor dining). But I get more than my share of flareups (sudden burning chest sensation, increased and discolored sputum, low-grade fever, reduced energy - or crushing fatigue). Both pulmonologists are still mostly adopting a wait and see for Brinsupri. But I am 51 and they are also concerned about preserving as much of my lung function as they can. So, not being able to take Macrolides is disappointing.