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I do the azithromycin and Etham as well as rifampin daily. Just added on clofazimine 2 pills daily
But this is my third try on the 18 month program.
In the past had some clear results. But after 2 years or so it returned. So here we go again.
But I have advanced BE. So I think too many hiding spots to MAC to lay low and regroup and regrow.
No super bad side effects. Just need eye exams and hearing tests every 3 months to make sure it’s ok.
Tired of all the drugs. Tired of being tired. But no options at this point.
First time on clofazimine so hope that makes a difference.
Go for monthly EKG’s to monitor that now. Fingers crossed.

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Replies to "I do the azithromycin and Etham as well as rifampin daily. Just added on clofazimine 2..."

@westcottkm3040 Sounds like you have been through a lot! I go through times of lots of coughing, and then less sometimes. The tiredness I’m not sure is 100% connected with lungs. I’m approaching 80 and all my parts are wearing out! my friends without Bx and MAC also report less energy. I’m not sure how much improvement I can expect.
I hope the clofazimine works for you.