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bob1955 avatar

ADT, maybe not? Anyone opted out of ADT?

Prostate Cancer | Last Active: 3 days ago | Replies (136)

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Profile picture for dgd1953 @dgd1953

I was 69 when diagnosed with 3+4 in January 2023. The urology clinic that did the biopsy automatically sent a sample for Decipher testing which came back in the high range. My decision was to do radiation (VMAT) and the urologist planned to give me ADT injections. But the RO was adamant that ADT was not only unnecessary but potentially harmful. He convinced the urologist and I received 39 radiation treatments without any ADT before, during, or after. I am now in remission with a PSA around 0.30 during my last two checks. No long term side effects to date. Hoping the smooth ride continues indefinitely.

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Replies to "I was 69 when diagnosed with 3+4 in January 2023. The urology clinic that did the..."

@dgd1953
Per my Gleason score I was given a intermediate risk which R/O stated recommendation would be radiation and hormone treatments. R/O ordered Decipher test, bone scan and PSMA.

My Decipher came back low risk versus you "high range" and my treatment was changed from radiation with hormone to just radiation only.

I would inquire what your urologist or R/O meant by high range to a more specific low risk, intermediate risk, or high risk. Those determinations per my Mayo urologists and R/Os are guiding factors of whether hormone treatments are recommended.

@dgd1953
I refused Orgovyx at this time because of co-morbidities. For example: If you have any heart conditions, the result could be death by heart attack, stroke, atrial fibrillation, or arrhythmia. If you have chronic kidney disease, it will speed the decline. It will worsen bone density. It can cause or worsen gynecomastia. Several specialists did not know any of this. You must do your own research. You can find good answers in a few minutes using Perplexity or other AI search tools.