← Return to Chronic pain due to chiari 1 malformation with syringomyelia

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@nanniesue4

I found out thru My Chart I have chiari malformation with tonsils of 9mm. I have been very sick since August of 2016 with migraines, pain from neck shooting up around my ears into my eyes with horrible pressure behind eyes, dizziness neausea vomiting and confusion. I spent 3 weeks in bed because I couldn't get up because of pressure behind eyes and dizziness. The symptoms have somewhat subsided with a few symptoms remaining. I have been told by neurologist the chiari malformation is too small to cause these symptoms. Please I need help. I have been told
That only neurologist specializing in chiari malformation wil bother with this disease and even if it's small can it cause these problems?

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Replies to "I found out thru My Chart I have chiari malformation with tonsils of 9mm. I have..."

Hi @nanniesue4 and welcome to Connect.
While we wait for others to respond about their experiences with chiari malformation, I thought you might like to read these stories about patients finding relief from pain caused by this condition

- Relief for pain caused by Chiari type I malformation http://mayocl.in/2qigntC
- Diagnosis and Treatment of Chiari Malformation Spurs Nikki Prins to Reach Out to Others http://mayocl.in/2rSSMRt

Does the neurologist that you consulted specialize in chiari malformation? Are you seeking a second opinion?