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anyone using Brinsupri in low dose?

MAC & Bronchiectasis | Last Active: 4 hours ago | Replies (7)

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I am open to every option. With coexisting M. abscessus, which is not being treated, pending evaluation in Denver, I would at least like to feel like something is being treated!

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Replies to "I am open to every option. With coexisting M. abscessus, which is not being treated, pending..."

@smtdoc Have you discussed the blood pressure issue with your primary doc or the doc who prescribed Brinsupri?
There is much we don't know about long-term use of the medication by the wider population yet, so be sure everyone involved in your care knows what you are experiencing.

@smtdoc Glad you will be having an evaluation in Denver.
My first thoughts were, for what it is worth.....If I do not eat bananas often or take a potassium tablet I get leg cramps at night. The saline, although we are all different, affects my sodium potassium balance. I mention this with the thought that possibly the saline, the Brinsupri and if you are having any anxiety in view of the big picture...(medications, sputum samples, Denver, etc.).....it could all be working together to raise the blood pressure. Hard to know sometimes, but a thought. My belief, no matter what it is....it is rarely and hardly ever just one thing that caused the event or change??????
Barbara