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DiscussionSeeking support from others with CRPS
Chronic Pain | Last Active: Dec 11, 2025 | Replies (5)Comment receiving replies
Replies to "Hi loriesco, Thank you for your kind response. I have another health disorder that my doctor..."
@songfamily2025 did you take a blood test for your vitamin B12? Maybe yours is normal? You should ask your doctor for a metabolic blood test. That’s where I originally found out my vitamin D was low. Also, my B12 was low. However they always tell me I’m in range. Now I tell them no being low or high, but in range is not normal. I want to be normal, so that’s why I qualify for the B12 injections. Also, I’ve been taking vitamin D for years cause my vitamin D was low. I would suggest you don’t absolutely need to take it. Take “vitamin code for women raw over 50.” it is an amazing supplement. I keep it in my house because a lot of times I don’t know if I’m ready for the vitamin B 12 injection. So I take the vitamin code and if I feel energized, I know I’m low and ready for an injection. If you take the injections, you have to monitor to make sure that you don’t get too high. Your body can fluctuate so I don’t know how careful you are about all of that and how much attention your doctor wants to pay. It’s not exactly ideal. (the injections) because your body doesn’t process things exactly evenly at exactly same intervals. So if I get some insomnia, I know I wasn’t ready for the B12..
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Hi @songfamily2025
Sorry to hear about your terrible pain situation. I totally can commiserate.
Do you know the reason why your doctor would not allow you VitB12 infusions?
I am asking, because I have a similar issue: generally VitB 12 , VitB6 and other Vitamins are prescribed for neuropathy pain, but in my case it does not work. Somehow my body cannot metabolize nutrients efficiently, so my VitB12 is constantly too high. The paradox is that too high levels of VitB, especially VitB6, can CAUSE neuropathy!
A real conundrum!