I am looking for others diagnosed with microscopic colitis

Posted by Kristi Motch @kristimotch, Jun 1, 2012

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

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Profile picture for ndough @ndough

@oregonian I’ve not taken budesonide, but it was for that exact reason. I’ve had mc for about 35 years now and the person who finally explained everything about the drug and what it can do to you was my pharmacist (makes sense). It is recommended if you have osteoporosis not to take it. It will just make your bones more brittle than they already are. It’s recommended to not take it if you have thyroid disease or osteoarthritis as well. Any kind of steroid like budesonide will damage your bones.

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Thanks, that is good to know. I broke my left shoulder a few years ago. Thing is, I fell on my right side and broke the left shoulder. This was because my had thrown my left arm up to catch myself so I know my bones are pretty brittle. I am not sure that my gastro doctor even knows that I have the osteoporosis!

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Profile picture for oregonian @oregonian

Thanks, that is good to know. I broke my left shoulder a few years ago. Thing is, I fell on my right side and broke the left shoulder. This was because my had thrown my left arm up to catch myself so I know my bones are pretty brittle. I am not sure that my gastro doctor even knows that I have the osteoporosis!

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@oregonian Definitely tell your GI you have it, and any other preexisting conditions. If you haven’t had a bone density test done, maybe you should get one. However, don’t take osteoporosis med if you can avoid it. That can cause damage if you have osteoarthritis. What does help is bumping up your Vitamin D3 and calcium, plus core exercises (like walking everyday). Also, if you spend only 15 minutes a day in the sun - without sunscreen - you get a full daily dose of regular vitamin D! And it doesn’t even have to be 15 minutes at one time.

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Profile picture for oregonian @oregonian

Thanks, that is good to know. I broke my left shoulder a few years ago. Thing is, I fell on my right side and broke the left shoulder. This was because my had thrown my left arm up to catch myself so I know my bones are pretty brittle. I am not sure that my gastro doctor even knows that I have the osteoporosis!

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Hi, @oregonian - A broken shoulder sounds painful.

Medical advice about the details of your particular condition and balancing your GI and your osteoporosis needs should come from your primary care doctor, gastroenterologist and/or endocrinologist. Mayo Clinic Connect members can share their experience but not provide medical advice.

I agree with @ndough that telling your gastroenterologist about the osteoporosis would be wise, if you've not already done so. Getting physician or multiple of your physicians' advice would be really good to ensure your GI and osteoporosis needs are all being met and risks addressed.

If you've not already, you might check out and consider following the Mayo Clinic Connect Osteoporosis & Bone Health support group https://connect.mayoclinic.org/group/osteoporosis/.

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I have collagenous microscopic colitis and Celiac disease. I've been on budesonide several times; unfortunately, this doesn't work for me. I feel miserable on it, and return to chronic diarrhea shortly after I stop. Unfortunately, this has made it challenging to maintain healthy potassium levels.

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Profile picture for szelisk @szelisk

I have collagenous microscopic colitis and Celiac disease. I've been on budesonide several times; unfortunately, this doesn't work for me. I feel miserable on it, and return to chronic diarrhea shortly after I stop. Unfortunately, this has made it challenging to maintain healthy potassium levels.

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@szelisk Green bananas! Whenever I have a flare up, I can eat green bananas. Don’t eat ripe ones, those help with constipation. But bananas have tons of potassium.

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