← Return to Chronic GVHD at 11 months post stem cell transplant: Discouraged
DiscussionChronic GVHD at 11 months post stem cell transplant: Discouraged
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Dec 12, 2025 | Replies (22)Comment receiving replies
Replies to "@loribmt My Fibroscan came back that I had very mild Grade 1 fatty liver. I started..."
@marylou329 Hi - I just wanted to add that I hope you do have a good experience on prednisone like Lori is describing, but for some people prednisone can cause severe mood issues and make it difficult to do anything because your mind is racing so fast. I’m not saying this to scare you but just to let any new prednisone user know that if you suddenly feel unpleasantly different from your usual self or find your self upset or angry consider it might be the prednisone and talk to your doctor. It can be a real issue for some people - lol yes I am someone who doesn’t do well on prednisone but I’ve been on it many, many times over the years and it’s saved my life so I respect it’s a very helpful medicine, I wish you all the best and hope you only feel the benefits of prednisone.
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@marylou329 LOL well, when that prednisone kicks in I expect you’ll be baking up a storm, filling cookie tins for the neighbors and setting up a stand on the corner. 😂
Years ago, I had an issue requiring mega-doses of steroids. For several days I was in-patient for 1000 ml daily of Solumedrol. After being released, I would then receive 2- 500ml infusions twice weekly, with many months of taper down to 250ml weekly, etc. OMG, I’d wake up the next morning at 7, just vibrating!! I swear I could have shingled a roof, laid whole house carpeting, mowed an acre lawn by hand, run a marathon all before 9 AM. 😂 So, obviously I didn’t actually do any of that but I did get my PT exercises in, some extra cleaning done around the house and made really wanky art work! Kinda miss some of those days!
Anyway, glad you’re doing ok and nothing egregious with GVHD!
Happy holidays to you and your family! It’s times such as these when we really feel the deep appreciation for being given a 2nd chance at life. Hugs!