← Return to Colorectal cancer (2 tumors) discovered during colonoscopy

Discussion
Comment receiving replies
Profile picture for kim19 @kim19

@geno77
Hi Gene , that’s some heavy stuff you and your family has been through . First things first : Oncologists says what I have is curable . He’s thinking it’s between stage 2/3 . My biopsies aren’t in yet , but my CTScan and mammogram look ok . I have some small ( too small to categorize) cyst on liver , and will be having an MRI soon . Course of action to be discussed next week , but I’m feeling really hopeful . That Lynch diagnosis is really scary . Won’t know if I have that for sure until the biopsies are in , but with similar family history , I imagine I do. From what I’m understanding; you are in a situation where you need constant monitoring for new cancer growth ? If that’s so , does insurance give you a hard time about all of the check-ups ? I feel like I’ve just aged 50 yrs since Friday with test every day since . I went to doctors once a year prior to Friday for just annual checkups and bloodwork .

Jump to this post


Replies to "@geno77 Hi Gene , that’s some heavy stuff you and your family has been through ...."

@kim19
Hello again Kim. I was staged at 2, so vey fortunate in that regard. So far, other than having constant loose stools and filling up our septic tank with toilet paper, it hasn't been too horrible. I did have to go back to the hospital as I got what is called a sleepy bowel. That was no fun. But, as far as having to go through a lot, I had more issues with my prostate cancer. I had a radical prostatectomy and about 4 months post surgery I wasn't feeling quite right. Long story short, I had to undergo radiation treatment along with ADT (Androgen Deprivation Therapy) which were Lupron injections every 3 months. Between the surgery, radiation and ADT I became 100% incontinent. I have an implant that allows me to control my urine. The device is supposed to last about 10 years, I made it 6 years on the first one, 5 years on the second, and so far I'm about 5 1/2 years on my 3rd device. But it beats Depends and pads! Sorry to get off on that rabbit trail! I have had no issues with insurance which for me is Medicare and Tricare (retired military). If there is a positive, I believe that they caught yours early enough to be plenty hopeful. The 1 cousin I menioned with her 3 children having colon cancer (twin girls and a son) all had stage 3 and all are surviving and thriving. Both my children tested negative for the mutated gene which meas my grandkids won't have the genetic mutation. Good luck on your discussions next week and your path forward. I kow it can all be overwhelming and nerve wracking, but reaching out on Mayo definitely gives you insight and knowledge through other people's stories.

@kim19, how are you doing? What did you learn about the course of action and next steps?