Hi,
My CRPS was not diagnosed until 14 months after my failed back surgery. 4 Spinal Fusions to cure Siatica. If I had never had surgery, which did nothing to help Sciatica, I would not have CRPS. I saw 15 doctors & PA's over that year and none would listen or acknowledge the CRPS. Finally my surgeon DX over the phone, like you I went on Google to view several different websites and realized I had every symptom including hair loss, sores all over my body, crowns & veneers coming loose, my right foot continues to swell and is always cold. My ankle has some paralysis making driving almost impossible.
I finally found a pain doctor that actually lists the condition on his website. I started PT & Chiropractor immediately 2 X a week for 4 months until UHC cut me off. I have new insurance starting JAN 1st so I hope to get back into the PT & Chiro.
I use a walker always at home because I have fallen several times due to feeling my right leg is shorter than my left so I trip. Last time resulted in a bruised rib on my left side which is very painful. We have removed all our throw rugs and I only wear "barefoot shoes", WateLves sold on Amazon.
Doctor is recommending SCS Spinal Cord Simulator, via Boston Scientific, which I will probably do the trial after the first of the year. I have heard positive things but not to expect 100% relief, 50 to 80%. I do not use pain meds, PT exercises help.
I wish you the best.
@tgbcolorado it must be awful. I have battled sciatica and severe back issues for over 20 years. I had a salon in a retirement community for 20 years and that only exacerbated the problem. I went out on disability at 63. Took 4 months on the first try with all the MRI'S and scans they had. I REFUSE to have surgery but right now I have mild neuropathy in the same places on both feet and thighs will get numb if I stand in one spot too long. It's hard to know what's back related and what's chemo related so right now I'm just rolling with the punches. I know I could not survive without my pain meds. I've been on hydrocodone for 20+ years. I can tell when I'm overdue for one, every 6 hours unless it's really bad then it's every 4, because the pain will start. I'll check and see that it's been 8 hours since last pill, no wonder. I am amazed you can go through this with no pain relief meds.