Does anyone have a solution to help manage Reclast side effects?
Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?
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@gently Thanks for this. I had done some research on NIH a couple of months back. They need to determine more testing to be done before they encourage or give Reclast infusions, because once it's in the body, there's no turning back. Even stopping it (meaning not getting the 2nd of what would have been 3 infusions), really doesn't make any difference. It seems to get into the body and stay in the body. I read one case where a woman had 1 Reclast infusion, then very similar reaction to mine and 12 years later, was still reacting. That's after 1 infusion.
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3 Reactions@msmaz57
So sorry for your sufferings with Reclast! Your story touches all of us that were prescribed this medicine, and had trust in our doctors. I suspect that the whole situation with medicines for OP reflects little attention that is given in medicine and society to people of older age with the logic that illness and sufferings belong to this age.
Best wishes to you, and please inform about further developments.
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1 Reaction@melia7 Thank you for the kinds words. Unfortunately, I think you are correct in what you are saying here. It's so disheartening to be told it's just old age and arthritis, when you know in your heart it was brought on by a drug that was supposed to help.
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4 Reactions@msmaz57
I researched connecting with Novartis
To report SUSPECTED ADVERSE REACTIONS, contact Novartis Pharmaceuticals Corporation at 1-888-669-6682 or FDA at 1-800-FDA-1088 or http://www.fda.gov/medwatch. Reclast is indicated for treatment of osteoporosis in postmenopausal women.
Note! Navartis no longer handles Reclast; it is now Sandoz pharmaceuticals at 800-525-8747 San doz pharmaceuticals acquired Reclast
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3 ReactionsJust had my first infusion a few days ago. Did the whole hydration/Tylenol/ antihistamine prep beforehand, during, and after. Now have pretty severe tinnitus and starting to have bone pain and dizziness as well. Things I'm considering to help, some per this thread: chlorophyll, dexamethasone, red light therapy, activated charcoal. Will report back!
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2 Reactions@melia7 need better medical research for OP…most meds are older, no great new ones without side effects for many (if not most people )....finally getting my strength back after dealing with CRC, doing well on PT and internist doesn’t want to stop my hard-earned progress, so I’m doing a very good combo supplement, doing PT , exercise and walking more…also some dietary adjustments to help bones… wishing you and all here good health !
@christut you described one of the great issues with OP meds….the need to take so many other meds to deal with side effects…as we age, there are some problems that can happen with all these drug interactions !
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1 Reaction@dingus My dermatologist rescued me twice. First, 2 doctors couldn't tell me why my joints around my hips and shoulders hurt so bad. 3 months went by. I saw my dermatologist for something else, but commented about my painful arthritis. He asked if my muscles hurt and then said, "Polymyalgia Rheumatica". I was on prednisone for 2 years and it ate my bones up, but I couldn't function from the pain without it. After that I was diagnosed with osteoporosis. I started Reclast infusions. As long as I was on prednisone, I had no side effects. By the 3rd year I was off prednisone. When I took the Reclast for the third time, I started having side effects. The worst was a terrific itching on my legs from the calf to the ankle. So bad, I couldn't sleep. I went to my dermatologist for that. He did the research and found that 11% of
patients on Reclast report itching legs. The capillaries were inflamed and it wasn't a rash, it was petechia. My internist ordered me a 6 day (I think) prescription of prednisone and it cleared up. My dermatologist suggested the side effects would increase with on-going infusions. My rheumatologist agreed. So, on to Prolia. Not taking that anymore either. Sticking with Pilates, calcium, walking with weights, etc. Good Luck to us all.
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2 Reactions@normajean77 I had a reclassified infusion in August I had the infusion at 8:00 am and at 7:00 that same evening I didn’t feel the best so I layed down and within minutes I hurt so bad I had to get up got to the stairs and had to ride my moms chair lift down. My daughter had to call the ambulance because I couldn’t stand or walk. I was in the hospital for 3 days went for a follow up with my doctor and she didn’t know anything about the severe side effects. I called the doctor that prescribed the infusion and he had his nurse call me and question how severe my pain really was. I told her it felt like death and I would let my bones deteriorate before I ever had it again. I still have pain from it and it sucks!! When will it go away? When the drug is out of my system? Or is it just going to keep happening?
Please, please report these atrocious adverse reactions to the FDA at MedWatch (/www.fda.gov/safety/medical-product-safety-information/medwatch-forms-fda-safety-reporting) or by calling 1-800-FDA-1088.
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2 Reactions