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Replies to "My PMR symptoms began this past June, 3&1/2 months into a very stressful time for me...."
@kayept
I developed after death of my husband and having surgery on my fingers after a fall so I think stress has a lot to do with it.
I have been on Actemra over 1 yr & it helps
I was already diagnosed with a couple of autoimmune conditions when PMR was diagnosed. Being diagnosed with one autoimmune condition "predisposes" people to having other autoimmune conditions.
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I was chronically "stressed out" because my face was electrified. I was diagnosed with trigeminal neuralgia before PMR was diagnosed. They said trigeminal neuralgia was congenital in my case.
https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/symptoms-causes/syc-20353344.
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When I told my ophthalmologist about the electrical pain around my eye, he said it wasn't an eye problem and referred me to a neurologist.
My rheumatologist asked me about facial pain when she screened me for GCA. I told her, "only the electrical facial pain." Ironically, trigeminal neuralgia was a vascular problem combined with inflammation but not GCA. Mostly it was a nerve problem.
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@kayept, I agree with you.
PMR and GCA afflict Europeans, especially Northern Europeans, and Caucasians at a higher rate than people of other races. I read that Minnesota has the highest incidence of PMR/GCA in the US.
GCA was identified as far back as the 10th Century by a physician in Baghdad who observed swollen arteries concurrent with vision loss.
My maternal aunt had both PMR/GCA, and I got both about 5 years ago. Both of us experienced the onset of symptoms after physical injuries. My aunt hurt her back moving furniture and I hurt my ankle walking backwards. Ironically, my mother-in-law came down with it after a family reunion that involved a road trip from Ontario to Florida, probably very stressful for her. She was in her 80s at the time and had a tough time getting it diagnosed. A doctor she was referred to and some family members thought she was malingering.
I think there's a trigger which causes the immune system of a person predisposed to go into overdrive. I often think PMR/GCA was waiting in the wings to get me.