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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @heidenout,

I'm glad that @lisalucier tagged me when she responded to your post. I have had IPMNs for a number of years now with only minor changes in size, so I have not done much besides an MRI every other year. When they were first discovered, I had an EUS (without biopsy or needle aspiration), then for several years I had annual MRIs, and now just every other year.

I was very concerned about them at first, as I have had three surgeries for a rare form of cancer in the upper digestive tract, and I feared that these cysts were more of the same, but there has been no evidence of that after many years.

You mentioned upper abdominal pain and back pain between your shoulders. I have never had any discomfort that I can attribute to the IPMN, but perhaps someone on this forum can relate and respond to your post.

Have you been having regular blood tests that monitor pancreatic functioning?

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Replies to "Hello @heidenout, I'm glad that @lisalucier tagged me when she responded to your post. I have..."

@hopeful33250 What blood tests monitor pancreatic function? Thank you

@hopeful33250 thanks for the info. I have been monitoring my pancreas function many times a year. Due to unpredictable acute pancreatitis.
I received my recent results from EUS with needle aspiration and it was determined is an IPMN with a CEA level of 9780. I am now pursuing a second opinion and options at MAYO in Rochester in the coming months.