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peterj116 avatar

Quality of Life survey

Prostate Cancer | Last Active: Dec 11, 2025 | Replies (15)

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Profile picture for Colleen Young, Connect Director @colleenyoung

@peterj116, I believe you might be referring to the Prostate Cancer Outcomes Registry in Australia and New Zealand https://prostatecancerregistry.org/

There are a variety of prostate cancer registries that help researchers. Here are a few:
- International Registry for Men With Advanced Prostate Cancer (IRONMAN) https://www.mayo.edu/research/clinical-trials/cls-20533339
- PROMISE, a nationwide registry of prostate cancer patients with inherited gene mutations. https://www.facingourrisk.org/research-clinical-trials/study/149/promise-registry-a-prostate-cancer-registry-of-outcomes-and-germline-mutations-for-improved-survival-and-treatment-effectiveness
- Prostate Cancer Registry – Update https://www.prostate-cancer-research.org.uk/registry-update/

Any others?

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Replies to "@peterj116, I believe you might be referring to the Prostate Cancer Outcomes Registry in Australia and..."

@colleenyoung Yep. That's the one. Is there an American equivalent, to ask actual patients how they're doing - as opposed to researchers?
Great from a mental health perspective.