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It has been nine years since I received radiation for base of tongue cancer. I've been having neck cramps for years, but the cramps seem to be occurring more frequently.

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Replies to "It has been nine years since I received radiation for base of tongue cancer. I've been..."

@ctzipp Hello and welcome. I too had neck issues for years however they eventually cleared up. Nine years seems like a long time to be having things get worse instead of better. Maybe some physical therapy might help. PT people are getting very clever in the ways of working out muscle and skeletal defects.
I guess to some degree these many years later I certainly can turn my head further in one direction than the other.
Other than giraffe neck, how are you doing otherwise?

@ctzipp, I add my welcome. I agree with @hrhwilliam that it might help to consult with physical therapy.

Has there been any changes in your life lately that may be contributing to the higher frequency of neck cramps?

Hi @ctzipp,

At age 39, I was officially Stage IVB T2N3M0 Tonsil cancer on my left side caused by HPV and 3 infected lymph nodes. I am now 17ys out (2008 diagnosis) where I had 35 rounds of Photon radiation which amounted to 70 Gy (7weeks) and 3 rounds of the platinum-based chemo Cisplatin.

My accessory spinal nerve is damaged (called Brachial Plexus Legions/Neuropathy) which is why my left shoulder sags and trapezius muscles wasting away with winging of the scapula which includes limited range of motion. What made it even worse was that I was diagnosed with Tongue cancer on my left side of my mouth on March 1, 2024, and had a left partial glossectomy with a radical forearm free flap surgery on April 3, 2024. It also included a modified radical neck dissection. I have since read some posts here and found a device online called Hugterra which helped relieve some of those neuropathy symptoms and discomfort coming from neck and shoulders. It provides 15-minute daily sessions that blend massage, stretching, Electrical Muscle Stimulation (EMS), and heat therapy, enhancing circulation, relaxing tense muscles, and restoring the neck's natural curve.

Good luck on your journey.