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Profile picture for jeff Marchi @jeffmarc

@ros0142
Your situation is not unusual. You’ve been in this forum for a long time. You should be aware that other people have come up with similar issues to what you are describing.

You don’t mention whether you are on ADT or an ARPI. Those can keep your cancer undetectable for years. They don’t actually kill it. They just suppress it and prevent it from growing..

You had radiation a year ago and you’ve been undetectable since, That usually means it’s a time to try stopping the drugs and see if your PSA rises. Have any of your doctors talked about doing that?

If you’ve managed to stay undetectable without any drugs, then that would be great.

In your case, a decipher test could tell you what your chance of reoccurrence is.

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@jeffmarc
Jeff, no ADTRARPI medicine taken and it was undetectable September 3. Yeah I’ve been part of the group for a while but have not been active. I have not had a decipher test PSA was .01 and CT pet scan did not show anything so I’m feeling good but still apprehensive as I’m sure many do. I’m sure I’m not the only one but I’m just wondering if there are many other people that have that with side effects and if anybody has had reoccurrence, thank you for the info I appreciate it I will be back in February third for next scan so I will be asking questions as to chance of reoccurrence fingers crossed and saying prayers for everyone here thanks, Jon