← Return to I am looking for others diagnosed with microscopic colitis
DiscussionI am looking for others diagnosed with microscopic colitis
Digestive Health | Last Active: Dec 12, 2025 | Replies (306)Comment receiving replies
Replies to "@janstur can you please let me know what your doctor says about Busdesonide? I’ve been on..."
carolejeffers. I was recently diagnosed with one of the microscopic colitis and put on the Budesonide. First 3 pills a day for 2 weeks,then 2 pills a day for 2 weeks and them 1 pill a day for 2 weeks and then stop! it cleared up the. colonitis but it came back in3 or 4 weeks. Back on 3 pills a day which works great. But doctor now says to wean myself off of it as before because of its long term effects of steroids.
I have not found this side effect in any research i've done. When I asked him to explain what were the long term effects of a low dose of steroids he kind of shrugged and said I would get a round back.
I do have a bit of a forward and downward tilt to my head. I am 82, had stomach cancer 10 years ago, anti cancer drugs gave me osteoporosis so now on annual infusion for that. I really want to know about any long term effects of the budesonide also,
Has anybody been on it for a long time?
Connect

@annpeters Yes, I'll post once I talk to my regular doc. I don't even try to see my GI. I have an appt. with her on the 17th. No worries. And I love her, she's young and researches everything. Very thorough!