Hi Kim,
My name is Gene and our diagosis' are very similar. Mine was discovered in March 2024 after going to the hospital due to a lot of blood while going to the bathroom. This led me immediately to the hospital ER. After having another episode at the ER, I immediately received a CT scan which showed I had something going on. The next thing I know the GI doctor was there telling me I was getting a colonoscopy the next morning. The results, 2 masses with one descending colon mass and one sigmoid mass. Weird thing is I did not have any pain or "known" issues until the blood. I had a colectomy 4 days later. Because I had a family history of GI type cancers from my fathers side, and myself along with 6 first cousins having a mutated gene that's how I was told I had Lynch Syndrome. Of the 6 first cousins having the mutated gene, my older brother has died from kidney cancer, one cousin died from pancreatic cancer, and all 3 children from another cousin have had colon cancer (all had surgery and all still surviving). My father died from colon cancer, and his mother (my grandmother) died from stomach cancer. I also, besides colon cancer, had previously had prostate cancer. I was fortunate that my colon cancer had not metastasized and 19 lymph nodes were clean. I am monitored very closely with checkup's and testing by oncology, urology, GI, and dermatology. I'm not sure how you were diagosed with Lynch Syndrome, but you can obviously ask. Also, the results of my previous genetic testing, they had told me I was 20% more likely to get a GI type cancer. They weren't wrong!