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Uncontrollable foot and leg movements

Neuropathy | Last Active: 3 hours ago | Replies (5)

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Profile picture for pah17 @pah17

Do you have Restless Leg Syndrome? I have neuropathy symptoms but two nerve conduction studies were negative. But I understand that I still may have small fiber neuropathy. My neurologist doesn't put much faith in the additional studies for SFN because if the results are positive or negative, the treatment is the same for the symptoms since there is not cure. Additional studies have ruled out any other physical issues that may contribute. So I am in the idiopathic category. I do have an evening drink with my husband and this has been our ritual for many years. I understand that alcohol is a known toxin and I just may be one of the more sensitive ones.
Of late I'm much more prone to leg and foot cramps at night where I often have to get up and walk and try not to howl. Both my neurologist and my PCP seem to suggest that I may have RLS because movement helps in that situation. I don't know what to think. I'd like to hear descriptions of RLS from people here who suffer. My 300mg. dose of Gabapentin before bed seems to help me to sleep most of the night on good nights. The Neurologist believes that Gabapentin is a "safe" drug and that I can certainly up the dose if I want. The fact is that I was on a course of 300mg 3x/day and I really thought that was overkill and I still do.
Right now I'm monitoring my situation. If I add an Ibuprofen to the regimen, it seems to help along with exercise, trying to reduce stress, sugar and alcohol. So far I am mobile at age 73 and feeling fortunate.

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Replies to "Do you have Restless Leg Syndrome? I have neuropathy symptoms but two nerve conduction studies were..."

@pah17 I don’t know what I have. My legs do not move at night or “when my eyes are closed “. When I am awake and sitting they are constantly moving. My balance has decreased when I start moving but after I start moving I am fine. None of the RLS drugs have changed anything. I have just been prescribed Lyrica. Low dose to start and increase it weekly.