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Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA
Polymyalgia Rheumatica (PMR) | Last Active: Dec 12, 2025 | Replies (120)Comment receiving replies
@johnbishop
I have been on prednisone for the past 5/6 yrs because of PMR. My doctor has suggested I try Actemera and wean myself off prednisone. I have had one infusion of Actemera so far without any side effects and am due for my second one in a week. I’m down to 10 mg of prednisone and going slowly with my reduction of it. So far all is good.
Replies to "@johnbishop I have been on prednisone for the past 5/6 yrs because of PMR. My doctor..."
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@steph1939 Actemra helped me taper completely off of Prednisone. I tapered 1 mg/month from Jan 2025 to Nov 2025. I am so happy that all of my prednisone side effects went away. I had a lot of them. In addition to the Prednisone, I was able to eliminate 2 other prescriptions that I was taking, due to the side effects.
Actemra helped me get my life back. I didn't feel any improvements until after the 3rd infusion.