Hello everyone,

my name is Penny and I live in Europe. I have been having peripheral neuropathy in my legs (first started in left foot) and hands for years. Additionally I have severe tongue burn as soon as I take a few steps, sometimes also in my lungs. As soon as I rest the pain in my legs come out and reach 7 to 8 often followed by muscle twitching and heavy cramping.

I have consulted countless doctors and specialists. So far I have only been diagnosed with chronic peripheral nerve pain. No over the counter pain medication such as Ibuprofen, Diclofenac, Novalgin etc. has ever helped.

I have been prescribed THC combined with CBD. Although highly dosed there was no postive effect. I have been given Pregabaline, but no pain relief, only side effects. Weaning of Pregabaline was difficult, pain increased since then.

I suppose the next "trial" will be some other antiepileptic or even antidepressant med.
I am not convinced, that any random medication is going to help until I can find the right diagnosis.

I would like to know more about trying out neurological medications before I start another run with side effects.

Please let me know what you think! Thanks!