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Profile picture for keldus @keldus

Oh, thank you for responding! GCA can make you feel you are all on your own.
My good eye gets “tired” then all is very blurry. Usually mornings are good. Love that you can drive, I wouldn’t attempt it.
Do you have the jaw Claudication? It can be painful. I’m mostly smooth foods with no chewing involved. I’m praying that will get better like my other hip, scalp and headaches did.
I’ll try to update after dr appointment this week.

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Replies to "Oh, thank you for responding! GCA can make you feel you are all on your own...."

@keldus this is an update to my previous post.
I am now driving, which is a blessing even if it is only during daylight hours, that’s OK.
I’m down to 50 mg per day on prednisone. My rheumatologist has me stepping down 10 mg per week.
I’m sleeping about four 4 1/2 hours a night. This isn’t normal for me. Last year, 2024, I was doing an easy seven hours a night. I guess another side effect?
I honestly feel like I’m not improving, at all. Maybe I’m supposed to feel this way. Another question for my rheumatologist.
I do have Prescription glasses now which have enabled me to drive.
I loathe not being able to work in my flower garden and Yard. I am too weak to sustain any type of physical labor. In that most of the time I am so jittery I feel like I could jump out of my skin.
Hopefully, this is temporary.