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DiscussionHair loss from PMR or Steroids?
Polymyalgia Rheumatica (PMR) | Last Active: 23 hours ago | Replies (59)Comment receiving replies
Replies to "@joebloggs I don't think doctors consider hair loss a significant enough side effect to mention it...."
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@teddyz agreed. I had to have high dose intravenous life saving prednisone for large vessel GCA a year ago .
However medical recognition that prednisone does affect hair ( as it does skin and bones so why not hair ?) needs research and medical confirmation.
Once it’s a recognised side effect of pred is maybe some pre counselling around the real psychological/ social impact of superficial changes to body and notably hair that prednisone causes could be routine.
My rheumatologists comment when I complained about heavy shedding of hair was “ I don’t see much of that “ and no other suggestions.
My local Dr observed my sudden and dramatic loss of hair said “it’s not from prednisone” rather more likely from stress and referred me to dermatologist who said nothing to the idea that prednisone caused my hair loss . He did a biopsy that was inconclusive.
Dermatologist had no comment on the cause or if the shedding would stop. Not reassuring, and no particular medical advice, except try minoxidil topically.
The take home message from my experience is Drs don’t accept that prednisone causes hair changes or loss . It seems from this forum and other online sources ( including AI) prednisone does change hair as it does bones and skin . However it also seems hair grows back when pred is reduced or ceased , sometimes with different texture.
That’s exactly what happened to me , after 3months my hair grew back, albeit curly and arguably thicker.
More importantly my GCA quickly came into remission with pred .
I’m back to good health.