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DiscussionIs Actemra (tocilizumab) for GCA worth the side effects?
Polymyalgia Rheumatica (PMR) | Last Active: Dec 9 7:18pm | Replies (30)Comment receiving replies
Replies to "@ropnrose I'm just wondering if your infusion dose of Actemra or the time interval between infusions..."
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@dadcue Due to my WBC continually getting lower and my respiratory infections, my rheumatologist just lowered my dosage. I was on 6 mg/kg. I just had my first lowered dose of 4 mg/kg. last Tuesday. My infusions are every 4 weeks. Before this, he talked about starting my 'taper' in Jan. 2027. Looks like I just started my taper. Hopefully, my WBC will improve, as well as my immunity.
I've never been completely pain-free. I took my last dose of Prednisone the first week of November, about the same time as my November infusion. The time between that infusion and my December infusion, my pain increased. Knees, hips, shoulders. After my infusion, it improved a bit. Are you pain-free?