Can someone help me about life after AUS 800 implant?

Posted by rodneyverrill @rodneyverrill, May 8, 2024

This is my first question/post so please excuse me as I a new at this. I am 58 and have had an RP in October of 2023. My prostate was 155 grams and since the procedure I have been left essentially incontinent using 7-9 large pads a day. Although this has been difficult, I feel fortunate my psa has fallen to .008, a number my doctor tells me is considered undetected.
I have tried PT with very little results, my surgeon recommended an AUS, so this coming Monday I will have surgery to have this installed. I have read many of the posts within the prostate cancer section, but I am still curious about discomfort after the 5-6 week healing process and "regular activity like swimming, golf, and more strenuous activities like mowing and lifting firewood. I am of course second guessing my decision but would be appreciative of any feedback any of you have.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for mantismike369 @mantismike369

I am 85 yr old male. I had seeds and external beam radiation in 1999. I have a suprapubic catheter because of urethral strictures. I am now incontinent. I am considering an AUS or an ileal conduit. Please share anything that might help me. Thank you. Michael

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If you haven’t already gotten the AUS please see my comment on June 19, 2025 about incontinence clamps.

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Profile picture for soflada @soflada

Have had an AUS 800 for a LONG time and I will share the good/bad as I've learned them. It is THE gold standard for continence after prostatectomy. Unfortunately, the design has a built in problem that will inevitably surface in the future--the cuff around the urethra will deform that delicate tube requiring either a "double cuff" or a replacement. My experience is that I had a very, very good 5-6 years with the first installation and a pretty good 3-5 years with the double cuff. Where I am right now, no point to replacing it again (due to advanced metastasized cancer) but I would not hesitate for a moment if I were in a better situation. Make sure you have a complete and thorough discussion with your urologist of the plusses and minuses involved. However, to my understanding, the AUS 800 is the only alternative to pads. BTW, don't be surprised if your urologist says they want no part of this--I had one that did so.

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Sorry to hear about your metastasis. There are mamy new treatments as you probably know. See tne EMBARK study. For theincontinence look into clamps. Works wonderfully for me,

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Profile picture for budisnothome @budisnothome

Take it slow and be careful sitting. I had my incision open up both times. You may be able to feel the cuff and sitting becomes hard if you sit on a hard surface. I agree it is life changing and so nice without a catheter. We can email or talk also. Learning how to use it takes a while but easy to do.

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@budisnothome Do you recommend getting scrotal support for the first week after an AUS insert? Husband just had surgery yesterday and doc never said to use scrotal support but I saw it online. Thanks for your help.

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Profile picture for mirsy @mirsy

@budisnothome Do you recommend getting scrotal support for the first week after an AUS insert? Husband just had surgery yesterday and doc never said to use scrotal support but I saw it online. Thanks for your help.

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@mirsy no. I did not use anything for either of my aus implants. Lots of ice and sit on a cushion. Good luck. Mine works great.

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Profile picture for budisnothome @budisnothome

@mirsy no. I did not use anything for either of my aus implants. Lots of ice and sit on a cushion. Good luck. Mine works great.

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Happy for you it works great!!!

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Profile picture for mirsy @mirsy

@budisnothome Do you recommend getting scrotal support for the first week after an AUS insert? Husband just had surgery yesterday and doc never said to use scrotal support but I saw it online. Thanks for your help.

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@mirsy
I had my AUS done on October 31.
Had scrotal support immediately after the surgery. Asked my doc how long I needed to use it he said "until you see me in 4 weeks". I used it until 12/2 when I saw him and he activated it.
So far I couldn't be happier.

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Thank you! Glad it all went well for you!!!

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Today is day 3 after surgery and my husband is doing pretty well. He does have pain from the stomach incision. Are the first 7 days the worse and then it calms down? Thanks again for your help.

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Profile picture for mirsy @mirsy

Today is day 3 after surgery and my husband is doing pretty well. He does have pain from the stomach incision. Are the first 7 days the worse and then it calms down? Thanks again for your help.

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@mirsy Yes. End of answer.

Longer version.... it can take up to 2 weeks for the incisions & swelling to calm down.
If you're helping him shower, I found that drying the area with a hair drier on not-too-hot works better than trying to gently use a towel.

Other than that... it just takes lots of rest, gentle movement & time.
You're nearly at the finish line. Doing well.

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