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@topeanut
Have you seen a neurologist? They can be helpful. Mine recommended ivig treatments 4 years ago and they are helping, though not as much as I’d hoped. However we’ve determined that I need to continue with them as last year during hurricane season (I live in Florida) I fell behind in my schedule and backslid seriously. But that still isn’t enough. I’m still tied to a wheelchair or my bed.
I’m beginning to think prayer is the only solution and I’m going to keep at that.
It’s really a shame that medical science hasn’t been able to help us but perhaps that’s our lot in life.
Keep at it and pray and I’ll add you to my prayer list.
God bless.

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Replies to "@topeanut Have you seen a neurologist? They can be helpful. Mine recommended ivig treatments 4 years..."

@itsmeagain
Hi again,
I was saddened to hear your story and am praying for you❤️ I do have so many questions! I have seen two neurologist but because my nerve biopsy and emg came back normal they do not believe it is a problem of neurology. I am wondering if I am just at the beginning stages; a question I did not think to ask at my appointments. Did your tests come back abnormal? When did they decide to do the spinal tap? I do agree that medical science is lacking in helping us:( I am uncertain what has caused this to YOU and I. I did get vaccinated several times and got mild COVID many times as well because I was in the dental field. I was under major stress when it all began too. I was taking care of my best friend, my dad, until his death. I know stress can cause major disfunction but this pain seems to be so much more, it is relentless! Thank you for your kind support🙏 Gentle hugs to you🤗