@mimistu12
Hi! Mimi:
Thanks for sharing your experience with us!
I am so sorry for all your sufferings; however, I truly admire your perseverance and courage to stay on this AI medication Famara for as long as you can while enduring through so much pain and fatigue! I am grateful and encouraged to learn that this medication has stopped the growth of cancerous cells that rely on estrogen to thrive, and keeps you from the recurrence of BC disease for 21 years - and counting - with family history and BRCA gene. Such an inspiring story!
I am not any expert; however, I found that physical therapists and occupational therapists have been helping me mitigate and reduce the aches and pains in my joints, back, hands, fingers, etc. It's not an ideal solution; however, it helps me function my daily life as normally as I could. One of our friends, @oregonmbcsurvives, at this site suggested that Chi gong practice has been particularly effective at joint pain relief. Perhaps you may consider giving it a try?
Thanks again for sharing your inspiring story with us! My prayers are with you for a better journey ahead with hope, peace, love and joy to enjoy your lovely grandchildren and loved ones!
@lifetraveler
Thank you so much for your uplifting message.
I guess my main goal in writing this was to see if any one else has experienced these side effects for this length of time.
I’ve been beating my head against the wall for 15 years. I’ve been to so many doctors trying to figure out why I am in so much pain and have such fatigue. I am not accepting that I have fibromyalgia not that I have a problem with it I just don’t feel like that’s what it is but I have been told that by two separate rheumatologist. The other two said I didn’t have that, but they didn’t know what I had. I tested negative for rheumatoid arthritis.
Another thing I would like to share is even though I had a bilateral mastectomy and my ovaries removed and even though I stayed on the Famara for almost 5 years, I did still develop breast cancer on my right side. My first cancer was on the left side.
And even though I didn’t have a breast, my new cancer found just enough breast tissue that was left behind to get going again. I caught it very early and I had my third mastectomy 😜lol but I just like to remind people that you can never ever let your guard down when it comes to breast cancer.
It wasn’t an estrogen fuel cancer, and I don’t even remember what it is, but it had nothing to do with the other cancer. I went through the surgery and chemo and I am fine now no radiation or any type of after treatment.
Once again, thank you for your uplifting message and maybe you can share how important it is for women, even though they may have had a bilateral mastectomy you can let your guard down.
Keeping up on your check-ups is the most important advice I can give to our breast cancer survivor sisters ♥️