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Profile picture for ladylennie @ladylennie

Update. I finished my taper last week but already knew it didn't work. Pain started again at 5 mg prednisone. My crp was 167 and esr 79. So I started back at 10 mg. It works during the day but wears off at night. The pain at night and early am is excruciating; knees, ankles, elbows and back. In am I take a tramadol and the prednisone. I plan to contact my primary today to find out what increased dose of prednisone I should be on. I should also be on a disease modifying anti rheumatic drugs (dmard) like methotrexate but can't find a rheumatologist. Has anyone been through this? Does it ever get better?

Its so hard to accept that i came through surgery, chemo and immunotherapy fine just to have this happen 2 months after I finished keytruda and all other treatment with clear scans.

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Replies to "Update. I finished my taper last week but already knew it didn't work. Pain started again..."

@ladylennie , ugh, I’m so sorry that you’re dealing with this level of pain. I’m sure it’s deflating when you just want to get on with your life.
Was your PCP able to help?
I’m not sure if you’ve mentioned this, but do you have access to a Pain Management clinic? Or palliative care through your cancer center? We shouldn’t have to live with this level of pain.