Connect
← Return to Where have you experienced pain due to PMR?H
Discussion
Where have you experienced pain due to PMR?H
Polymyalgia Rheumatica (PMR) | Last Active: Feb 22 5:37am | Replies (68)Comment receiving replies
@jasharum I’ve just been discharged from hospital with GCA. I am a white, 80 yr old, woman with scandanavian descent.
I had all major markers, inflammation of scalp, hip and knee pain, extreme headaches and jaw claudication. These symptoms would last around three months then move on to a new one.
Then it affected my eyes. I had double vision left eye for less than an hour, made dr appt. Day after Thanksgiving total loss of vision in right eye. Admitted to hospital and immediately started mega doses of prednisone in IV. Four bags 24-hour daily for three days. Vision loss is permanent. Waiting on results of temporal biopsy while on steroid treatment at home.
Previous to GCA I have non hodgins lymphoma which I had two years of chemotherapy every other month. Onchologist remarked sed rate was off and inflammation was high……see her in January .
Replies to "@jasharum I’ve just been discharged from hospital with GCA. I am a white, 80 yr old,..."
Connect
@keldus I am 85 years. I was erroneously diagnosed with GCA in August, 2024, when I suddenly lost the sight in my right eye. I immediately went to my eye doctor. He suspected GCA and told me to go to the hospital immediately. I too was given massive doses of prednisone for 3 days. Happened on a Friday. On Sunday they did a temporal artery biopsy. Waited two days for results which were negative. But they kept treating me like it was CGA. Then they decided maybe it was a small stoke in the tiny veins behind my eye. I ended up in the stroke ward for a complete workup which revealed nothing. Still don't know the exact cause of my blindness but it, too is permanent. I find life a bit more difficult with only one eye. But I am able to drive during the day and my left eye is pretty good. The big problem was being on that awful drug, prednisone. They made me do a slow taper and I was taking prednisone for 7 months before I could finally stop. I'm surprised to hear you say you had hip and knee pain as a part of GCA symptoms. They didn't mention that to me. I have painful knees and hips all the time due to arthritis. But I had none of the other symptoms, yet a few of my doctors still think it was GCA. Is your other eye ok? So sorry to hear you had this experience.