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Has anyone been diagnosed with Meningioma with edema

Brain Tumor | Last Active: 2 days ago | Replies (21)

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@kdog1957
It is definitely frightening and shocking! I started on steroids yesterday and my headaches are gone. How long ago did you do the surgery, was it a craniotomy? I’m not sure I want radiation, I meet with first neurosurgeon Wednesday. Who decides on treatment? Do you lose your hair with radiation? Yours sounds fairly large, how long was the recovery? How are you doing now?

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Replies to "@kdog1957 It is definitely frightening and shocking! I started on steroids yesterday and my headaches are..."

@as72
Hi, good to hear that the headache is gone. Hopefully you won’t have to be on steroids for too long; they can cause some issues. They made me temporarily diabetic. Strangely, I didn’t have any headaches. But the large tumor size and the edema and swelling were making me slowly go insane. My symptoms were similar to stroke or dementia. I’m lucky I didn’t have a stroke. Emergency craniotomy surgery was done a few days after the tumor was discovered. That was 10 months ago. Went home using a walker two weeks after surgery after a long period of physical and occupational therapy. I was walking unaided and biking two weeks after getting home. I had follow-up radiation treatment in the summer. For me the treatments were easy with just some minor hair loss at the temple. It’s starting to grow back 3 months after finishing treatment. I’m doing fine now, no after effects except the incision is a bit irritated. This may be lifelong as I have some surgical scars from more than 40 years ago that still get irritated. Plus I get to look forward to periodic MRI’s for the rest of my life. Huzzah! Since everyone’s case is different, I can’t predict what the neurosurgeon will recommend. Sorry for the long post. Good luck with the appointment.