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skin is extremely sensitive to touch. it. started after Covid
Autoimmune Diseases | Last Active: Feb 14 11:25am | Replies (25)Comment receiving replies
Hello 🙂
@itsmeagain
Especially thinking of you. I hope you have had success treating your awful symptoms< 3 I recently read your post and had to continually look at who had written it! I was certain I had written it because it describes 100% how I have been feeling since January 2024:( I have visited so many specialist (allergy, dermatology, rheumatology, neurology) all of which have stated they do not know what is causing my pain but are sorry. I had a punch biopsy but it was negative for small-fibers neuropathy (a comment question from another). My current PCP is just treating my pain with Cym**lta and Ly**ca. I am grateful but at times it does not help as much as I would hope. My life sadly has dramatically changed. I used to always be so busy; working and doing athletics. I am excitedly looking forward to attending the PRC in February at the Mayo in Rochester. But at the same time I just want to get better and try and stay hopeful I will but as the days continue my hope lessens. I am going to post and pray that you see this even though it has been so long so that we can help each other. Please write back:)
Replies to "Hello :) @itsmeagain Especially thinking of you. I hope you have had success treating your awful..."
@topeanut
I just remembered that my CIDP was determined by a spinal tap . And I remember reading that this was a good test for that.
My first one didn’t reveal much. Maybe the doctor didn’t do it right. I’ll be honest, it was extremely painful. But the second one, which was the determinant, was a breeze! Honestly. I guess it does depend on the doctor. This one was over before I realized it.
The neurologist can prescribe it.
I just don’t know how you find the right one.
Try it and good luck.
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@topeanut
Have you seen a neurologist? They can be helpful. Mine recommended ivig treatments 4 years ago and they are helping, though not as much as I’d hoped. However we’ve determined that I need to continue with them as last year during hurricane season (I live in Florida) I fell behind in my schedule and backslid seriously. But that still isn’t enough. I’m still tied to a wheelchair or my bed.
I’m beginning to think prayer is the only solution and I’m going to keep at that.
It’s really a shame that medical science hasn’t been able to help us but perhaps that’s our lot in life.
Keep at it and pray and I’ll add you to my prayer list.
God bless.