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@lpockat may I ask your age? I’m 70 on Budesonide and wondering if I’ll take it for life. I know there are side effects but have to see if the good out weighs the bad.

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Replies to "@lpockat may I ask your age? I’m 70 on Budesonide and wondering if I’ll take it..."

@annpeters I will be 72 in March. I was diagnosed with coliti 4 years ago, and started using budesonide then. I have good luck with it, and usually only take 2 a day. I also discovered that if I take the 3 or the 2 pills during a 12 hour period, instead of all at once, I have better results. Taking this really helps my back and knees. I'v had a major back surgery in 2017 - I had good results for about 4 years, and then started with a worse pain in my pelvic area. I tried injections, PT, and then someone recommended meeting with a Dr. that does a medtronic device with a battery pack, and that has really made a great difference as well. The budesonide helps with the arthritis that has settled in my back since that major surgery. I also have a 20 degree S curve at the bottom of the spine. I also have bone one bone in my knees, but wouldn't be able to do the PT if I had surgery on my knees, and could end up with more pain. Again, the Budesonide really helps my knee pain - almost have none! The only problem I have with side effects is it keeps me awake and makes me a bit jittery. This is one reason I try and stick to 2 and would like to get down to 1 . I can handle getting poor sleep if the pain is under control. Good luck to you - and I hope you can stop taking it, which means your symptoms are under control 🙂

@annpeters I should have also said that since the diverticulitis was removed, my colitis has been a lot better - so maybe the diverticulitis was actually giving me more grief than the colitis. I do have trouble with a car sick feeling, and the Budesonide really helps with this.