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Anyone dealing with ANCA GPA Vasculitis?

Autoimmune Diseases | Last Active: 18 hours ago | Replies (37)

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Profile picture for raisedjay @raisedjay

@becsbuddy I was diagnosed with p Anca Vasculitis a year ago. I have been getting 2 infustions of rituximab every 6 months. My last ones in September stopped helping. I am having one infusion next week . They increased my prednisone to 60 mg from 5 over a week ago. As I wait for the infusion I feel weaker and hypersentive to the point where I can't do much of anything. Is anyone familiar with these symptoms. I found MCC because it is one of the best. Susan Peala

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Replies to "@becsbuddy I was diagnosed with p Anca Vasculitis a year ago. I have been getting 2..."

@raisedjay I was diagnosed in '21 with ANCA Vasculitis and began twice yearly Rituximab infusions. I am sorry for your struggles. So far, I am faring pretty well. I have been able to remain on only 5mg of Prednisone daily. I was also prescribed thrice weekly Septa antibiotic for life....to help guard against respiratory infections. I am blessed to have an excellent young lady as my knowledgeable rheumatologist. I am praying for you right now!