I am so sorry that you are facing this challenge with your husband. I understand your fears about what the future might bring. For me, The hardest part was the not knowing how and when the situation will progress. And who you can count on for support. I started a notebook with all the information that could possibly be of assistance in this situation. A section for doctor visits, questions and medications, a section for financial and legal matters and advice ( powers of attorney for finances/legal and health care decisions), a section for caregivers and respite care, and most importantly, a section where I think about and prioritize the things that will help me get from day to day, eg. daily prayer, phone calls to friends who understand, posting on websites like this one, keeping up with my own health care needs. It's easy to forget ourselves and get lost in the daily grind of care for a loved one with dementia. It is heartbreaking to watch him slowly disappear and our marriage change from one of mutual love and respect to one of a child and his mother. Please continue to post here. We all understand what you are facing and want to support you.