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Metastatic bone cancer with unknown primary: Anyone else?

Cancer | Last Active: Dec 14, 2025 | Replies (25)

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@christinaclc ~ Wow! So its you and me! Yes, they did a biopsy on my spine. I was in the hospital for 26 days in April/May of this year. I had massive blood clots & while they were trying to figure out why I was having them, they found the cancer. They did every test, scan, biopsy possible, and still no primary. When I started chemo in June the tumor board & my Oncologist chose to treat as Ovarian cancer and used those meds. The Gyn-Onc concluded its not a Gyno cancer, so here we are again. Interesting though, I also have a rod & 7 screws in my leg. Coincidence? I also hope & pray they know what their doing.

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Replies to "@christinaclc ~ Wow! So its you and me! Yes, they did a biopsy on my spine...."

@jobo1031 hi. So strange. The hospital I am going to is my second opinion with no diagnosis. They sent my biopsy to Mayo Clinic where a team of musculoskeletal doctors came up with non small cell carcinoma, myeloma or lymphoma so it’s scary. Putting trust into doctor’s opinions when I have a rare case and I would hope I am being treated for the correct diagnosis. It took over 6 months to get this far. I had my 7th chemo on Friday. I finished about 15 radiation treatments on 3 different parts of my body on 11/7. It’s been crazy and tiring. I am not a doctor person. Ugh. Let’s pray for each other 🙏🏽❤️