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Metastatic bone cancer with unknown primary: Anyone else?
Cancer | Last Active: Dec 14, 2025 | Replies (25)Comment receiving replies
@jobo1031
Yes, I had no tumor. I have metastatic bone cancer with unknown primary. Mayo Clinic took a guess with non small cell carcinoma, myeloma or lymphoma. All my biopsies were negative or inclusive. My left humerus broke while carrying 14 lbs of dog bones. I had them biopsy from the break. I have a rod and screws. I have completed radiation and on my 8th chemo. I sure hope and pray they know what they are doing.
Replies to "@jobo1031 Yes, I had no tumor. I have metastatic bone cancer with unknown primary. Mayo Clinic..."
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@christinaclc ~ Wow! So its you and me! Yes, they did a biopsy on my spine. I was in the hospital for 26 days in April/May of this year. I had massive blood clots & while they were trying to figure out why I was having them, they found the cancer. They did every test, scan, biopsy possible, and still no primary. When I started chemo in June the tumor board & my Oncologist chose to treat as Ovarian cancer and used those meds. The Gyn-Onc concluded its not a Gyno cancer, so here we are again. Interesting though, I also have a rod & 7 screws in my leg. Coincidence? I also hope & pray they know what their doing.