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@ndough
I already had Osteoporosis when I was diagnosed with MC. I am worried about my bone density so I've weaned off Budesonide so I'm taking 3mg every 3 days. So far, so good. But what will happen to my bones? There aren't any alternatives. (My GI doc is not at all attentive. He never told me about the bone risk. I'm 65 with Osteoporosis!)

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Replies to "@ndough I already had Osteoporosis when I was diagnosed with MC. I am worried about my..."

@janstur I understand about how you feel about your GI. I have finally been referred to a female GI. I hope she is more attentive. In the 25 years I’ve had GI’s, every single one of them has turned out to be as misogynistic as the last. My husband hasn’t had a problem with any of them. I guess the best thing to do is keep an eye on your bone density. There are positive things you can do to help. Take vitamin D3. My PC has me taking a lot, but you need to discuss that with your doc. Start doing core and weight bearing exercises (like walking every day). Sit in the sun for 15 minutes every day. That’s all it takes to get your daily dose of vitamin D. Unfortunately, I started breaking a lot of bones and my last spinal X-ray showed that my bones looked like lace…you could see holes through them.

@janstur
I have the same issue. My friend turned me on to AlgaeCal. She's seen a 10% increase in bone density in six months. It's a calcium derived from algae. I took Fosomax before and that didn't help in the 4 years I took it so I thought what the heck, I'll try it. Have only been taking a couple of weeks so we'll see. I just weaned off Budesonide. Was taking every fourth day and my GI said it only lasts two days so what's the point? I don't have diarrhea so far so we'll see how I do. I've had stomach aches every day for probably a year but I've never changed my diet (I'm stubborn that way!). Have had MC for a year and a half now. I feel your pain!

@janstur if your GI is inattentive, be cautious weaning off budesonide. My GI didn't mean me of properly. I was on B for 15 years. I took 1.5 months to wean and should have taken 6 months! I went into adrenal crisis and almost died! My GI then referred me to an endocrinologist to wean off. My adrenals were suppressed for 15 years with Budesonide taking over making cortisol, so I am fortunate that they started producing cortisol on their own again. That doesn't always happen when they are suppressed by meds for a long length of time.