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mikejj244 avatar

New Bronchiectasis diagnosis - need advice

MAC & Bronchiectasis | Last Active: 6 hours ago | Replies (33)

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Profile picture for pacathy @pacathy

The only thing I have to add is that I noticed you said you’re about to go on Medicare. Supplement plans with regular Medicare seem to give people more options than Advantage plans when your care/meds may be changing. There are better sources than here for that subject, but a thought to consider.

I second Scoop’s advice to see a pulmonologist who treats bronchiectasis patients. My first pulmonologist (who I think is a good general one) didn’t mention the bronchiectasis finding on the CT or airway clearance despite telling me the CT looked terrible. He’d changed my appt to a phone follow-up.
Long story, but I went to Mayo and they did bronch, adjusted meds, etc. .
That chest pain is concerning to me. Have you seen a cardiologist, had a stress test or calcium scan or further testing? An EKG only shows changes if you’ve had or about to have a heart attack. Talk to you prime MD for referral. I guess I had more than 1 thing..

It would be a very rare medical person who thinks you’re making it up, btw.

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Replies to "The only thing I have to add is that I noticed you said you’re about to..."

@pacathy It has been a couple of years now, but when the pulmo doctors I have seen in the past drew blanks...they pushed me off onto cardiologist, ent, gastroenterologist. I had stress test, and scope in the heart. I passed the stress test and the arteries were clear enough that I did not need any stents etc. I did stomach scope with gastroenterologist - everything looked normal to him. The ENT doctor did a scope and some CAT scans on throat etc. No significant issues found. It all led me back to lung doctors and where I currently am now.