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Just starting prednisone for recent PMR dx. Terrified of side effects
Polymyalgia Rheumatica (PMR) | Last Active: 4 days ago | Replies (27)Comment receiving replies
I have a rheumatology visit today so I will ask how I am supposed to stop Actemra. Fortunately, during the 7 years I have been on Actemra, it doesn't seem to cause me any serious side effects like Prednisone did. My rheumatologist doesn't want me to take Prednisone on a long term basis again.
My rheumatologist says Actemra should "prevent flares" from recurring better than Prednisone did so that is why I still need Actemra. I'm wondering if I never have a flare ... how do I know if I still need Actemra. I didn't have very good luck when Actemra was "interrupted" during Covid because of the a supply chain issue but that was years ago.
Replies to "@hosers2 I have a rheumatology visit today so I will ask how I am supposed to..."
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@dadcue It would certainly be interesting to know if Hydroxychloroquine works for you like it did for me. I started out at 200mg and slowly reduced it over 18 months. I haven’t had a re-occurrence in two years now.
Again, I should emphasize: I firmly believe those aches and pains I had while taking Simvastatin were not only identical to the major trauma of PMR. Those who continue to take any statins will, in my opinion, lessen their chances of ever recovering from Polymyalgia Rhematica.