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Relapsing Polychondritis

Autoimmune Diseases | Last Active: Apr 23 8:30am | Replies (23)

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Profile picture for sweetkandy76 @sweetkandy76

@slkanowitz thanks for the heads up on the Voltaren, when my ears turn red they burn and hurt. I was recently diagnosed with Relapsing Polycondritis. I also have Addison’s disease, Lupus SLE, Cushings and Pulmonary Hypertension. I constantly ask why me? Why do I have to bear all this 💩 diseases??
Is this Karma? Was I someone horrible in a previous life, Genghis Khan or Hitler. Sorry I have a dark warped sense of humor! 🤪

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Replies to "@slkanowitz thanks for the heads up on the Voltaren, when my ears turn red they burn..."

@sweetkandy76 what did you hear about Voltaren? Besides a possibility of relapsing polycondritis (RP) I also have fixed drug eruption (FDE) which triggers from nsaid and I believe is in Voltaren. I was "diagnosed" with RP at the same time I foolishly took Aleve and had a drug eruption. So I'm not convinced the PN diagnosed was correct. I am the only patient these doctors have seen with either condition therefore I'm skeptical. PN and FDE can look similar. I also learned that I should a diet containing nightshade veggies if it's PN. So much to learn. I should add that FDE was confirmed with a biopsy several years ago. Again that doctor admitted she hadn't ever heard of until she saw the test results. 😵‍💫