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Just starting prednisone for recent PMR dx. Terrified of side effects
Polymyalgia Rheumatica (PMR) | Last Active: 4 days ago | Replies (27)Comment receiving replies
@dadcue That is very interesting. The article says it was updated in 2025. I wonder if that paragraph was added at that time.
I do know that I successfully transitioned over to HCL (over a 30 day period) completely eliminating the prednisone. I then tapered off of HCL over about 18 months. Haven’t had any signs of a re-occurrence of PMR for about two years now. Wondering if HCL would work for you. Considering that Actemra keeps you well, but only if you continue to take it. Wondering what the long term effects are from taking Actemran the remainder of your life.
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@hosers2
I have a rheumatology visit today so I will ask how I am supposed to stop Actemra. Fortunately, during the 7 years I have been on Actemra, it doesn't seem to cause me any serious side effects like Prednisone did. My rheumatologist doesn't want me to take Prednisone on a long term basis again.
My rheumatologist says Actemra should "prevent flares" from recurring better than Prednisone did so that is why I still need Actemra. I'm wondering if I never have a flare ... how do I know if I still need Actemra. I didn't have very good luck when Actemra was "interrupted" during Covid because of the a supply chain issue but that was years ago.