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primary periodic paralysis
Does anyone have experience with PPP? Has anyone found a way to avoid falls?
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Does anyone have experience with PPP? Has anyone found a way to avoid falls?
Interested in more discussions like this? Go to the Bones, Joints & Muscles Support Group.
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Not certain about the name but when I had an incomplete spinal cord injury at 18 years of age it caused a Central Cord injury that involved temporary periods of paralysis of arm and/or leg on my left side.
I had a neck injury at 16 (wrestling) and ended up in the hospital in traction for 2 weeks followed by 6 months in a brace. Fast forward and I reinjured it just prior to going on a 3 week safari. PCP thought I just strained it and gave me muscle relaxants and pain killers and sent me on my way. Bouncing around in a range rover for a few weeks led to my arm being partially paralyzed. Got home and went right to spinal fusion surgery. It was so bad that the anesthesiologist made me stay awake during intubation to make sure she didn't do further damage.
This situation is not injury related but may have a genetic cause so I have to do genetic testing. It may respond to some drug therapy if that turns out to be it.