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Symptoms after you stop prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Dec 7 7:54pm | Replies (87)

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Profile picture for csimmonds @csimmonds

@vbird I was diagnosed with PMR in March of 2025 and started prednisone. I have tapered and am now on 3mg. I see my rheumatologist in a couple of weeks and hope to continue to taper to zero. I have some pain but it is manageable with Tylenol. In the past two months my hair has started thinning. Could the prednisone be the cause even after all this time? It really bothers me.

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Replies to "@vbird I was diagnosed with PMR in March of 2025 and started prednisone. I have tapered..."

@csimmonds I was losing a lot of hair. I am now at 2mg/day and my hair stop falling out.

@csimmonds yes,and hair will grow back after you stop taking prednisone.

@csimmonds My hair has been thinning as well and it is disturbing. I've never had so much hair fall out like this. I think I am starting to reverse it, I bought an infrared comb-style device from Sharper Image called Hairmax and you run it over your scalp for 8-12 minutes every other day. It takes 4 months to show results and I am at 3 months now and can see new hair starting to come back. It is a slow process. I was going to also take Nutrafol pills for hair loss till I saw how high the Vitamin A and Selenium levels are plus the Biotin levels and biotin can negatively affect any blood tests you may need so I decided to skip that. Fingers crossed!

@csimmonds Yes, the hair thinning is a known side effect of prednisone. Mine didn't thin until I had been on it for about a year. I took Biotin for awhile and that helped. But Biotin has an effect on blood test results so you have to stop taking it a week before a blood test.

@csimmonds

Your disease is likely what is causing your hair loss or at least that is what my rheumatologist believes. I was diagnosed with GCA in mid April and began shedding in August. I’ve been tapering from prednisone and am also on a corticosteroid sparing agent and I’m happy to report that my hair seems to be thickening. When I started shedding, I added horsetail plant drops to my daily diet as the horsetail plant has a high concentration of silica. I’m not certain this did the trick but there is definitely a noticeable change.