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← Return to Tymos and kidney function?
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In reply to @kathysueweeks "I’ve been on Tymlos for four months and was shocked to find my GfR went down..." + (show)
@kathysueweeks
It is staggering what we don't know, isn't it? After I posted about this in August 2024, my eGFR declined slightly further in early 2025, coming in at 60 and then 59 (endo and internist, different labs), which isn't terrible given my age but still representd a drop of more than 10 points from Feb 2024 to Feb 2025 (from 72 to 59). My endocrinologist speculated that I was perhaps dehydrated when the blood for the metabolic panel was drawn, since it was late in the morning and I hadn't had anything since the night before, so I've made an effort to drink more water during the day and in fact my eGFR has rebounded in the two latest tests (9/2025 and 11/2025), to 71 (!) from one lab (endo) and 66 from the second lab (internist). BUN and albumin are both stable and well within normal limits (although BUN dropped when I started drinking more, which seems a normal reaction). So who knows?
Good luck to you. I'll be interested in what your endo has to say.
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@anewyorker
Thank you so much for taking the time to reply in such detail to me. I’ll admit I’ve been a bit scared since I saw how low my GFR is, especially since I can’t consult with my endocrinologist for two more weeks.
I’m happy to hear your numbers went up when better hydrated! That’s so encouraging. And I’ve read on this forum (was that you? 😊) that it’s best to have lab work done when hydrated and also more than two hours after the Tymlos injection ( my labs were within one hour of the injection, fasting, first thing in the morning).
My PCP advised me to really increase my water intake and I’m being re-tested tomorrow. Fingers crossed that it will be higher.
Thank you again for your kind and very helpful response. Wishing you well!