Hypothyroid plus tingling in hands and feet, muscle cramps

Hi @jenport, and welcome to Connect. I'm glad you reached out to the group and hope that through connecting with others you're able to find some advice and relief. I'm tagging @coloradoroses and @michellecrcrn, two members who have recently discussed their experiences with hypothyroid.

I also found some information from Mayo Clinic on hypothyroidism that I think you may find helpful (http://www.mayoclinic.org/diseases-conditions/hypothyroidism/symptoms-causes/dxc-20155382). Keep us posted on your journey @jenport. I'm sure the group would love to hear progress made, new methods of treatment, etc.

Sorry haven't replied. Been going to dr appointments for my daughter who is suffering thyroiditis/nodules. That is a very high tsh number. It will take at least 4 weeks til you feel the medication working. In the meantime, try eliminating trigger foods also like dairy and gluten if you can. I'm curious to know if you've had antibodies tested(thyroglobulin and peri oxidase), t3, reverset3, ferritin, iron??

Thank you for responding. It's a little ironic that I just finished a grilled cheese sandwich and then read that I should avoid dairy and gluten. I've been reducing my fiber (I eat a high fiber diet) because of Synthroid absorption concerns, but I didn't realize that gluten and dairy are not good. What does it trigger? As far as other blood values, the only other one I see is the free T4 value which is 0.6. Hope your daughter is doing better.

Many foods cause inflammation responses and I think even some fruits and some veggies like broccoli can cause issues(goitrogens) I recently purchased the book Hashimoto's thyroiditis the root cause and found it to be very informative. Your freet4 seems low. But without other testing, it's hard to distinguish the cause. If you have hashimotos, then inflammation surely would cause many issues. Maybe try cutting out dairy for a month and see how you feel. Or refined sugars. I eliminated slowly as at first I was overwhelmed. But for me, dairy causes many problems including gut issues. It is different for every person, some can have certain foods, while others cannot. I highly recommend writing in a journal to help you see the "pattern". And thank you, we are awaiting blood tests for my daughter as she is showing symptoms of hashis. .

I will look up the book. I need to get a second opinion from a different endocrinologist, too. There's so many facets to this that I was never aware of, and need to have more insight. I am very overwhelmed right now because just small tasks increase my exhaustion, tingling in my hands, and muscle cramping. I will try to cut out dairy...

Exactly what I'm dealing with with my daughter. Fatigue, cold, cramping, tires easily with any form of exertion. Brought her to primary which blood tests show hypothyroid, ultrasound shows mild enlargement of both her lobes and a nodule. E.N.T(ear nose throat) dr sent her for another Ultra sound as he felt another lump, referred to pediatric endo(which I'm very unhappy with), still waiting on blood tests. But endo called it subclinical hypothyroid. Waiting for Monday to come. Cause I was told by endo dr Thursday or fridaybi would get a call about her labs. No call as of yet. Thinking of getting another opinion. As of the past few months, no medication no diet change was referred. I am looking into integrative dr now. Keep pushing Drs if you don't feel good. It's your body and Drs are to listen to their patients.

A second opinion is a good idea. I came across this article from a hypothyroid blogger and she shares different places to look for a doctor. Thought it might be helpful to pass along: http://hypothyroidmom.com/30-online-resources-to-find-a-good-thyroid-doctor/

I know this is a long shot since this this conversation was 9 years ago...

I too have extreme leg cramps and leg spasms for over 7 months now. They started out at night only. Then they were night and daytime occasionally. Now they are day and night off and on ALL the time. The leg spasms feel like a thunderstorm happening inside of my legs, even when I wake up. Sometime it keeps me up at night. I was very active with pickleball and golf, until the cramps and spasms started. I now have NOT been active for 3 months now and issues seem to only get worse. I have had many cardiac tests and there have not been any significant findings. Most of my blood work is good. However, LDL is 184 and Lipoprotein A is 265. hTSH 4.69.

What other tests can be done to figure out the cause? I feel like what ever this is, is getting worse each month.

@humormepleez I am a walker and I also work out 3 x’s per week. I get horrible debilitating cramps in my thighs at night as well. Since I’ve been drinking LMNT Electrolytes, I haven’t had any. I order these on Amazon and they seem to do the trick for me. I wish you all the best and I’m so sorry you suffer with these awful cramps. I hope the LMNT works for you.

Are you drinking any Electrolytes? Try LMNT Electrolytes, which I order on Amazon. My cramps were so bad I would almost pass out from the pain! You must be loosing a lot of water when you play pickle ball. LMNT will help that. Good luck!