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Oncocytic Cell Carcinoma with angioinvasion

Thyroid Cancer | Last Active: Jun 29 4:42pm | Replies (44)

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@samjdp Thank you! The first surgery was a breeze; this one, not so much.

Long rant below LOL, more about me just needing to vent, so please feel free not to read! < 3

I ended up getting a staph infection in the neck wound immediately after surgery. They lanced it open (while I was awake, so that was a joy) and drained it, but the infection was bad enough that I had to go in for surgery #3 on 11/25 to reopen everything, clean it out, and install a drain.

I was in the hospital for 4 days after that on heavy antibiotics. The nurses were literally terrible. I kept asking for water and never got it, and I couldn't go get my own because I was hooked up to a 3 line IV and couldn't leave my room. I have hypoglycemia, and they kept missing meal time, resulting in me having blood sugar issues. They woke me up every 45 minutes for vitals, and I went 48 full hours with no sleep. I legit thought I was going to have a mental breakdown from sleep deprivation!

They told me on Friday 11/28 that my kidneys were having a hard time, I told them yeah because no one will get me water to drink! So they hooked me up to a fluid line along with all the antibiotics. They wanted to keep me longer, and I asked "ok can you forego the vitals every hour so I can sleep?" They said that was hospital policy and they couldn't. I told them I was checking myself out then, and they needed to advise me on home care.

They finally caved and sent me home Friday night with lots of antibiotics to take and a flush/drain regimen for the neck wound that I do 3 times a day. And today I finally feel like I'm going to make it! 😀

If you made it to the end, thank you for coming to my Ted Talk! lololol

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Replies to "@samjdp Thank you! The first surgery was a breeze; this one, not so much. Long rant..."

@ejjb Hi Erin!

Oh my gosh - what an absolute nightmare surgery you had! I am terribly sorry to hear that you had so many issues. I am also deeply annoyed for your sake that the nurses were as awful as they were.
Nursing personnel make all the difference in the way a patient recovers.

Have you been advised on the RAI going forward?

My scan has been postponed to the 14th January now - very annoyed by that as I have had blood works done now, and judging by those it seems the RAI wasn’t as effective as hoped and I just really want to know “what next”

Please take care of yourself and take time to rest and recover - it’s you first now!

Reach out any time… always available for a Ted Talk…😜🤣

Hugs to you.
Samantha. 🦋