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DiscussionSmall Fiber Neuropathy: What helps?
Neuropathy | Last Active: May 5 11:26am | Replies (280)Comment receiving replies
Replies to "Hi @johnbishop, I am trying to find out if someone is getting treatment not only for..."
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Hi @ncameron, I am of the same mind frame as @jeffrapp on when it comes to a treatment that can regenerate nerves. WinSanTor has a clinical trial on Pirenzepine that is supposed to work by helping nerve regeneration - https://winsantor.com/ --- A 24-Week Study of Topical Pirenzepine or Placebo in Type 2 Diabetic Patients (T2DM) With Peripheral Neuropathy: https://clinicaltrials.gov/ct2/show/NCT04005287. I think it's a long way off to help most suffering from neuropathic pain (just my opinion).
I think the supplements I'm taking have helped slow and possibly stopped the progression of my small fiber PN but I only have numbness that it's pretty subjective on my part unless I want to pay for a nerve conduction test or skin punch biopsy to see if it's gotten any better or worse. I can say that I'm finally having a little more feeling in my feet lately but they are still numb. It's just that I can feel areas on the feet and wiggle the toes and they feel more normal now than a year ago. I shared that in my previous post that I think you saw in the Member Neuropathy Journey Stories: What's Yours discussion.
I think all of us would love a fix 🙂 to take us back to pre neuropathy days. I had held out hope for a long time on stem cell therapy for neuropathy but there doesn't seem like there is much support and testing on it. We had a researcher speak at a meeting of the Minnesota Neuropathy Association on stem cell therapy research in August of 2018. I took some notes and added the research links when I got home. The last section of the notes details why the science is not there yet.
Minnesota Neuropathy Association Meeting Notes Aug 4, 2018:
- https://cdn.prod-carehubs.net/n1/748e8fe697af5de8/uploads/2019/02/18Aug04-MNA-Mtg-Notes-1.pdf