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Small Fiber Neuropathy: What helps?

Neuropathy | Last Active: May 17 2:03pm | Replies (284)

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@lacy2

@poppsy1 Hello from Northern Ontario. I too have challenges mental and physical and your post caught my eye. have not been following your posts but "not coping at all well" is familiar to me I get so overwhelmed I barely remember my own name. It's when the pain and anxiety take a very brief respite and I "almost" feel normal, is such a nice feeling but not happening a lot. I wish I had a "safety net" for the hours/days when I am not coping... I do listen to You Tube tapes (some are better than others) relaxation etc., and stay in bed which is too often lately.... but when things flare up it's hard to cope.... wanted you to know, and am sure you do, that you are not alone.
As my husband says; take one day at a time and I say can I take one hour at a time (I have even mentioned one minute at a time). I hope your gp and a crps contact you soon....here it seems many medical offices are closing on Fridays, so its 3 days wait for help which is a long time when need help. Will be thinking of you - Monday was disastrous for me; Tuesday livable; yesterday morning terrible and pm a bit better.... it's such a see-saw, merri go round - cant plan anything either. Hope some members you keep in touch with will get back to you today too ... J.

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Replies to "@poppsy1 Hello from Northern Ontario. I too have challenges mental and physical and your post caught..."

Hi Lacy Thank you for replying. I understand where your coming from. not knowing what each day will bring makes situation heck of a lot worse. My Husband died 5 years ago so now live on my own. Its such a cruel existence having to live with our out of whack bodies. I have no one one to talk or even a hug when I need it, which is every day. I was a very happy, active individual before these ugly symptoms started to grow in my body. Magic wand is what we need. Im having real problems with pain clinic at moment, spent most of today trying to get hold of someone to talk to regarding so called Drs phone appt that didn't happen. Dont know about u but I'm fed up with answering machines, bring back the god old days when u could actually speak to a human being. I miss the old me so very much, as I'm sure u do. I to get so overwhelmed with it all, not ashamed to say that I feel really scared at times, its all so sereal. Hope things improve for you sooner rather than later. Regards and Hugs