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Small Fiber Neuropathy: What helps?

Neuropathy | Last Active: May 17 2:03pm | Replies (284)

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@poppsy1

Hi All . Need support im not coping at all well today Every part of me in pain especially down there and scalp. Have contact gp and a crps clinic in London. Waiting reply.

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Replies to "Hi All . Need support im not coping at all well today Every part of me..."

@poppsy1 Hello from Northern Ontario. I too have challenges mental and physical and your post caught my eye. have not been following your posts but "not coping at all well" is familiar to me I get so overwhelmed I barely remember my own name. It's when the pain and anxiety take a very brief respite and I "almost" feel normal, is such a nice feeling but not happening a lot. I wish I had a "safety net" for the hours/days when I am not coping... I do listen to You Tube tapes (some are better than others) relaxation etc., and stay in bed which is too often lately.... but when things flare up it's hard to cope.... wanted you to know, and am sure you do, that you are not alone.
As my husband says; take one day at a time and I say can I take one hour at a time (I have even mentioned one minute at a time). I hope your gp and a crps contact you soon....here it seems many medical offices are closing on Fridays, so its 3 days wait for help which is a long time when need help. Will be thinking of you - Monday was disastrous for me; Tuesday livable; yesterday morning terrible and pm a bit better.... it's such a see-saw, merri go round - cant plan anything either. Hope some members you keep in touch with will get back to you today too ... J.

@poppsy1, Oh how sad I am for you. My dermatologist said I had a flaky scalp and told me to use Head and Shoulders shampoo. I use it but cannot tell that it makes a difference. My scalp still burns. There is a shampoo RX that I used for a while, but can't remember the name. My PCP doubled my nightly Amitriptyline to 20 mg. in the hope that it would help my scalp and my "down there" parts. Have you seen a GYN doctor? You might have lichen sclerosis or something else, but I use Halobetasol frequently and have a compounded mixture that numbs the area. I am in a flare mode once again. It never seems to go away so the numbing is essential. My heart goes out to you for all your pain and suffering. I hope you get some help soon. With all good wishes, @joybringer1